Wednesday, August 18, 2021

Memories of a Patient

 

If you have children who are not yet old enough to receive a COVID vaccine, you might not want to read any further.

This is my experience. My memories. My life.  

I want to open your eyes--I want you to see. I am going to tell you what it's like to be a kid in a hospital with a respiratory disease for which there is no cure. I will tell you what I remember, and I want you to know:  these could be the long-term effects for more than 2% of our children in the United States before this pandemic is over. 

I don't want pity.

I pray I will change your heart, and change your mind.

My earliest memories are of being in a hospital in the early 1960s. I was hospitalized with pneumonia, and my doctors were trying to find a combination of drugs that would work on a 3 year-old child. Keep in mind I was just a kid, so I can't tell you exactly what was used, and how it might have helped. I'm telling you what I remember. I remember being in an oxygen tent just like the one in the photograph above. For 30 minutes a day, I was allowed to sit up, outside of the tent. It was the best, because my mom could read to me, and I could hear her (instead of struggling to hear her through the heavy plastic of the tent). Then I remember going right back to sleep, because it was hard to be outside of the tent. I had pneumonia numerous times before I turned 8--lots of oxygen tents, lots of tests, and lots of missed childhood experiences. I missed my first day of school in Kindergarten, and in first grade. I missed Halloweens (boy, that was tough) and birthdays. We did have tutors in the hospital, but most of the time, you didn't feel much like learning. I remember lots of coughing, lots of vomiting, and feeling scared--scared because I was sick, and sometimes because I might be getting sick (a kid shouldn't have to be worrying about that!). I remember being pounded on the back to loosen phlegm. I remember shots and more needle sticks. That was the childhood I remember.

Having so many bouts of pneumonia as a child permanently scarred my lungs. They will never, ever be healthy. As a kid, I wasn't allowed to run long distances, as the scarring caused me to develop asthma. Before inhalers were widely available, I just had to be really careful (what a burden to place on a child). Anything that could possibly trigger an asthma attack was forbidden. I got used to not being able to do things my friends could do; I missed a lot of fun stuff. And, I was sick a lot. Frequent lung infections, pneumonia. More missed social interactions. HUNDREDS of x-rays (yeah, that's not a great thing to be exposed to either). 

I cannot begin to imagine the financial impact my illnesses had on my parents. We were never "well-off", and how much of that was due to hospital bills? I will never know. I DO know the financial impact I deal with today, and have always dealt with; frequent respiratory illnesses, antibiotics, steroids, preventatives, tests, doctor visits, co-pays, missed work days (and the guilt I have over leaving my co-workers with extra work), missed job opportunities...my conservative guess is at least $3,000,000. At least. And that doesn't include the emotional and mental toll:  on me, and on my family members. The people I love worry about me a lot. I would do anything to keep them from that. Every single time I feel myself getting sick, I think, "How can I tell them without them worrying again?" And there is no answer. Never. 

A positive? I know my body. I can advocate for myself. But again, that's a burden to place on a kid--I had to always know what I could and could not do. And I am grateful. So grateful to still be alive, and for medicines and healthcare providers who did, and are doing, such a good job taking care of me. I don't take things for granted. I now I am very lucky--things could be so very different.

I could go on, but I have a feeling you wouldn't care to keep reading--this could quickly turn into a "woe is me", and that's NOT the point I am trying to make.

Pediatric COVID cases are on the rise, to the highest levels so far recorded

It makes me feel physically ill to read that kids are now (as of 8/18/2021) TWO PERCENT of all people hospitalized with COVID in the United States. It makes me physically ill, and angry, because this was completely preventable. If adults had done the right thing and been vaccinated, the outbreak of the Delta variant would be much less potent, widespread, and deadly. If adults had done the right thing, the easy thing, and worn a mask, kids would not be getting sick and being hospitalized. I could go on and on and on about our adult responsibilities to the children of this planet, but much has been said, more eloquently than I am capable of articulating.

Why on earth would YOU choose to subject a child to a life like mine? If you CHOOSE to be unvaccinated, you most certainly are choosing to expose a child to a very serious illness, with serious, life-long consequences. If you are not vaccinated, you are most certainly going to spread COVID to a parent, a care-giver, a teacher--perhaps without even knowing it--and you most certainly are going to change the lives of many people forever.

You could change your own child's life forever. It's your decision, your choice. Choose health.

Please.

Saturday, August 14, 2021

Whatever Happened to The Golden Rule?

 

 
I've been thinking a lot recently about The Golden Rule. You know the one (it's a pretty universal concept, common to most religions on earth):  
 
                    "Do unto others as you would have them do unto you." [I learned this version in Protestant Sunday School]
            Another variation, from Sunday School and from the minister in church services:
                    "Love thy neighbor as thyself"
 
 
In the year 2021, I ask you:  what happened?  It's been a long time since I have been in any Protestant or Catholic church. Have ministers and priests just stopped talking about it? In the list of "Top Ten Things You Should Know if You Want to Follow Jesus", has The Golden Rule just slipped to # 11?  Or # 99??
 
Seriously--I am asking.

And yes, I AM just going to focus on US Protestants and Catholics, because according to Wikipedia, "In 2019, Christians represent 65% of the total adult population, 43% identifying as Protestants, 20% as Catholics, and 2% as Mormons. People with no formal religious identity at 26% of the total population." So, the Protestants are the majority in this country, and their leaders have, as a whole, the "loudest and largest 'voice' and influence in the United States. Where are these leaders? In these days of a global pandemic, what are they talking about on Sunday mornings? What is more important--right now or any time really--than treating others as you want to be treated? Of loving your neighbor as much as you love yourself? 
Because the people I see on television and on social media--the ones standing up at school board meetings and city council meetings--screaming about "their rights" and "their freedom to be unmasked and unvaccinated", the ones calling and emailing death threats to their mayors and local health commissioners--they haven't heard much about The Golden Rule in the churches they are attending on Sunday mornings. The people harassing kids and others on the street for having the "audacity" to wear a mask--are they sleeping through the Sunday morning meetings? 
 
What the hell is going on in our country????
 
Did some of us lose our moral compass through a hole in our jeans pocket? Did it slip out of our handbags when we reached for a lipstick?

Where did our compassion go?

Oh, I know full well that what I am seeing on television and social media is a very small minority of people in my community, and in my country. Most folks want to do the right thing, the smart thing, to protect themselves and others. It's just that this small, vicious minority is sucking all the air from around the rest of us, leaving us breathless and wondering what is happening to our country. How did we get here? Or have we always been like this?
 
If COVID and its' variants were "just" sickening and killing adults, I would be a little less concerned and confused. But COVID sickens and kills everyone. Sickens everyone...sometimes forever. Old people, young people, pregnant women, and kids. You know, those little people we are supposed to nurture and protect and love so fiercely? Yeah, there are too many of them (>1) now on ventilators in hospitals because stupid adults failed them.
 
KIDS. There are people in my neighborhood, in my community, who are viciously and recklessly willing to sicken and kill KIDS. Because they don't want a simple vaccine. Or, even worse, they can't be convinced to wear. a. fucking. mask. They hide behind bogus "information", the all-encompassing word, "freedom!", and a total disregard for other people, and they are willing to sacrifice the youngest and sickest for this. I guess I shouldn't be surprised; some very wise young adults have pointed out that this has certainly been the case for their entire lifetimes--they saw adults every day who would rather have "Second Amendment FREEDOM" than protect them from gun violence in their schools. Who chose "open carry" over safe schools and the kids inside.

And here's the thing--the thing that troubles me most--our KIDS are watching and learning from we adults. They are hearing, loud and clear, the message we are allowing to escape from adult lips:  
 
                                                        "To hell with other people."

Our future? Could be. Unless (and I am being deliberately cruel) all those stupid anti-vaxxers get what they deserve and die of COVID.

Or, maybe not. I think it's up to us, the majority of people in the United States, to commit to remembering, repeating, and teaching The Golden Rule. Every day. Saying it louder and louder, to drown out the voices of the mean and vicious. Let's find ways to practice The Golden Rule. Heck, if you attend a religious service of any kind, ask the preacher, rabbi, priest, imam, or priestess to do a service on The Golden Rule. Push it back up in to that # 1 slot. 
 
We have to do this. We have to. Because, I think there's another universal teaching, common to every religion, said very well in Zoroastrianism:
            
                                         “One day you will have to reap what you have sown.” 
                                                    “If you sow a thorn you will reap a thorn.”